Sailing at Robinson Crusoe

In Loosdrecht is this island called Robinson Crusoe; a completely accessible island consisting of a big house with one living room and lots of bedrooms along with various boats in all kinds of sizes and degrees of accessibility. I’ve been here on holiday already quite some times, but always with my parents. This week is my first holiday without them! There are volunteers who are care givers of some kind or sailors, and sometimes even both. Apart from that the crew on the island is really nice too, and it’s a really fun group of participants. At first I was quite excited and a tiny bit scared, but everyone is really nice and I didn’t break any bones just yet so I guess things are looking up!

Here’s a picture of me in an Access Dinghy sailing out of the harbor. All functions are connected to a control box similar to the one I have on my wheelchair and that way I can sail all one. Love it!

In Loosdrecht is this island called Robinson Crusoe; a completely accessible island consisting of a big house with one living room and lots of bedrooms along with various boats in all kinds of sizes and degrees of accessibility. I’ve been here on holiday already quite some times, but always with my parents. This week is my first holiday without them! There are volunteers who are care givers of some kind or sailors, and sometimes even both. Apart from that the crew on the island is really nice too, and it’s a really fun group of participants. At first I was quite excited and a tiny bit scared, but everyone is really nice and I didn’t break any bones just yet so I guess things are looking up!

Here’s a picture of me in an Access Dinghy sailing out of the harbor. All functions are connected to a control box similar to the one I have on my wheelchair and that way I can sail all one. Love it!

Elf Fantasy Fair 2013

Elf Fantasy Fair 2013

Every year in a weekend in april, the Elf Fantasy Fair is held in Haarzuilens (Utrecht) in a huge park around a beautiful castle. About two third of the visitors are dressed up in some way or another. In fact, if you don’t have a costume or weird hair color or funny shoes or glitter on your face or elven ears in any way, you really stand out. Popular actors or authors in the fantasy genre are there as well, and there are hundreds of little booths where you can buy clothing, accessories, or food along with some other things.

The first ‘real’ time Désirée and me met was at that fair, if we neglect “hi I’m Lily and I’m tired and I can’t even see straight anymore bye” after a concert. That time I was lying in the hospital in Utrecht, and I managed to get a few hours off to visit the fair and meet my internet-friend. That year my costume included an IV infuse and several bandaids on my arms, along with pale face and dark circles under my eyes. Anyway, ever since then Désirée and me visit the Elf Fantasy Fair each year together and we have a shit load of fun planning and designing our costumes beforehand.

In those last years I’ve been working hard on improving my costume, and I can proudly say that I’ve succeeded. This year’s costume consisted of black and red, in the gothic-witch-kind-of-way, along with a wheelchair draped with red and silver. I mean, hey, I’ve got that stupid wheelchair and it’s part of me, I can’t just dress up and neglect the wheelchair right?

Pictures coming up!

It angers me that in every goddamn supermarket, convenience store and bookshop you’ll find piles of Fifty Shades of Shit, but not even big bookstores have Terry Goodkind’s work in stock.

Today in class we had this future project, as my mentor called it. One by one we needed to sit in front of the class and present our future plans to the rest, and we would give him or her advice or tell what we think of their plans.

When it was my turn I told them honestly that I had no plans whatsoever, and they started suggesting things they thought fit me well. In the end almost all of them came to the conclusion that they thought I was very social and friendly and optimistic. Now, the first part of that was a true shock and I answered that I didn’t see it like that at all. Really, I would love to have this option where I get a message on my phone every morning with something like “Hey Lily, I don’t think you’re annoying, I like talking to you and being around you, no I don’t pretend to be friendly because I feel sorry for you, and yes I do see you as a friend”.

Anyway, they decided that I should do something with cheering people up, talking to people and being there for them. For example talking to people with disabilities, or problems at home, or who are depressed or feeling bad about themselves/lives in general. Helping them see things positively and enjoy life to it’s fullest with what (little) is given them. It has never occurred to me, but actually I think it’s a pretty awesome idea!! Will look into it further and who knows? :)

Swap swap!

A little while ago now I was called by the producers of a television show called ‘Puberruil’ here in the Netherlands. Roughly translated it means as much as ‘teen-swap’. The show is about two teens that exchange places, families and lives in general for a few days. For Puberruil XTRA there’s always one with some kind of handicap or disability, and I was asked if I wanted to take part. Hell yes!

Wednesday afternoon I arrived in Kootwijkerbroek, a little farm-like village near Barneveld. The exchange-parents didn’t know I was in a wheelchair and brought my dog, so that was quite exciting and I was a little worried for their reaction. But it turned out really good and they’re really nice and kind people. That evening I met Roos’ (the girl with whom I’m swapping) friends and we had a kind of picnic in a huge pile of hay. First though I needed to be pulled out of the shit and sand in which I was stuck.. Then they needed to transfer the blankets, drinks and snacks in front of the hay for I couldn’t climb the hay pile. It was a lot of fun though and I had a great time! Her friends are really nice and I arrived back “home” with a smile on my face and frozen feet.

Then yesterday I got to work in the shoe shop in which Roos normally works on weekends. I even sold two pairs of shoes! (I must admit though that those customers were fake and acting haha).. Later that day her friends came by again and we had to paint our nails and put on this horribly smelling and incredibly sticky masks on our faces. With her mother I started on a mosaic mirror that evening after dinner and then I went to bed. A little later than I hoped though..

Because today I’m “free” for I had a training day in Amsterdam to learn all about financial stuff, but it was torturing early! Woke up at 6 AM while I only got to sleep at 12 PM/1 AM that night. Not to be recommended.

But it was quite a disappointment for me how fake this show actually is. 95% of the conversations and actions are either acted, set into scene, rehearsed a few dozen times, or the director takes charge and tells you what to talk about, ask or say. Real big pity, but I guess that’s inevitable.

Alright, enough with those negative words! Basically I’m having a wonderful time and it’s really exciting and loads of fun! The people are all very friendly and helpful and it’s really cool to know that I’ll be on tv.

Guys, I’m telling you, this is the start of my great Hollywood career! You’d better all be quick and ask for autographs already, in a little while they’ll be worth a fortune.

Right now I’m I back on my way to Kootwijkerbroek again, with a nervous boy driving the car. Really, this guy can’t be much older than me. And basically I’m just focusing really hard on this text post to not start laughing out loud. It may be a little mean but it’s right out hilarious how nervous he is. His hands are almost trembling! A few minutes ago his mother called to make sure he’s safe. Thankfully (for him) he’s quite a good driver, otherwise I would have refused right away. But it’s just funny how he’s looking back every minute or so with wide eyes, like “oh my god is she still alive?!”

After a long but amazing day I finally lay back comfortably in the bus on my way home. There’s nothing quite as magical as that; gazing out of the window as you watch the world which keeps on turning around you, and you see it passing by in all it’s glory and grandness as it seems to almost come alive at night.

Enjoying the rare rays of sun with my German aunt, uncle and cousin.

Easter resulted in us having a nice four-day-long weekend, and to celebrate that our German family came to visit; my aunt Annette, uncle Ulli and cousin Vincent. Family, I came to realize, is an amazing thing. It’s truly wonderful how good (about yourself and basically everything) you can feel when having fun with your family.

Dewi, Vincent, and me were quite content with trying to beat each other at Temple Run and watching hilarious YouTube videos this Saturday. By the way, I did beat them with Temple Run.

They took my baby!

Today was the day I looked forward to for weeks, and just wished I could have skipped both at the same time. For a few weeks now I’ve been racing around in my new wheelchair, the awesome Twist, although it wasn’t really done yet. But mysteriously part of the wheelchair was stuck in a truck somewhere between Switzerland and the Netherlands. The parts should’ve arrived around the end of February and the beginning of March, but till a few days back nothing was delivered.

I got a phone call yesterday of Gerard asking me if he could take my wheelchair the next day, to finish it and make it look beautiful to then bring it back on Friday. Of course I didn’t want to lose my baby, but I had no choice whatsoever. As for now, I’m sitting in my old noise-making-awfully-slow-and-wobbly-which-can’t-even-overwin-the-doormat-as-an-obstacle-wheelchair. What they say; “you get used to luxury way too easily” turns out to be true I guess.

Wish me luck surviving these next three days, I may need it! Sigh